When the Caregiver Takes a Break

During my caregiving years, people consistently reminded me to take care of myself – to give myself a break. While I knew my friends and family meant well by nudging me, I felt relatively certain they had no idea what my “taking a break” entailed. Much preparation goes into leaving for a few days. You are not just packing for yourself.

I created a “Caring for Mom” notebook with tabs for each category of information one would need to stay with my mother in my home. Once the notebook was complete, I could update it easily when something changed. Using a three-ring binder and creating the documents in Microsoft Word and Excel made updating information easy.

Sections included the “legal” documents which included her DNR, Advanced Directive, Power of Attorney, and Last Will and Testament; General Notes; Exercises; Daily/Weekly Checklists; and Medical. The tabbed sections were behind the page full of emergency and non-emergency phone numbers.

Another tool I used to help others help me was my trusty little label maker.  I labeled pantry shelves, kitchen drawers, tableware, and mom’s supplies. I even put labels on the knife blocks to remind helpers to hand wash the knives! I have to chuckle. My kitchen, bathrooms, laundry room, and mom’s bedroom and sitting room all reminded me of a church kitchen where everything is neatly identified.

Several meals and meal kits were prepared; the freezer and pantry stocked with carefully packed and labeled foods. Instructions for using the Keurig were taped to the beverage bar. Although mom was not a huge fan of “take out” there were a few restaurants she enjoyed. My computer browser stored the passwords and credit card for those, along with Shipt and Instacart access, so the helper could easily place an order for delivery.

I worked with health care providers to ensure there were enough medications to last through a few days after my return. Pill planners were filled for the entire time I was away. Extra supplies of disposable underwear, toilet paper, paper towels, disinfectant wipes, etc. were stocked.

Mom’s clothes were washed, ironed (where necessary), and hung by “outfits” in her closet. Instructions for washing sheets and clothes were taped to the inside cabinet door above the washer. How to set the dryer was also posted.

Much as packing diapers and formula and several changes of clothes are packed for a small child, every detail had to be covered. Even though I believed I had left nothing wanting, I would still receive daily calls – sometimes multiple calls in a day – asking where something was or what to do about “x”.  Getting away was physical but not disconnected. (What did we do before mobile phones?!)

Prepping for a “vacation” when caregiving reminded me of preparing to be away from my full-time job. It took a week or two to prepare to be gone. Upon return, it took a week or two to catch up. Sometimes I wondered if the time off was worth the effort. Of course, having a break is necessary for rejuvenation and mental health.

Should you find yourself in a caregiving mode I hope my experience will help guide you in preparing to give yourself a break. Even if you do not have the responsibility of another person, some of these tips may be helpful to others who at some point may come take care of you.